The rare nature of brain cancer subtypes means that it can take many years to accumulate sufficient specimens for meaningful research. This month we highlight the contribution of the brain tumour bank at the Kolling Institute in Sydney. Established in 2003, the collection is now the largest in the BCBA Network and having recently completed a specimen audit it is probably also the most up to date. Under the direction of A/Prof Viive Howell, tissues collected and archived from donors at the Royal North Shore and North Shore Private Hospitals for over 15 years are making an invaluable contribution to both local and international research into many brain cancer subtypes.
For information on recent landmark studies and further information on the Kolling Institute Brain Tumour Bank click here
The first meeting of the Australian Brain Cancer Mission Strategic Advisory Group was hosted by the Federal Government agency, Cancer Australia, in Sydney on 3rd/4th April 2018. BCBA consortium members Anna Nowak, Lindy Jeffree, Mark Rosenthal and Robyn Leonard are members of the Strategic Advisory Group. The Group was established to provide strategic advice and guidance to support the $100 million Australian Brain Cancer Mission in achieving its objective of doubling the survival rates and improving the quality of life of patients with brain cancer over the next 10 years.
For more information on The Mission click here
$175,000 and counting - what an incredible fundraising result! To our sponsors, riders, donors and everyone involved in making this event such a resounding success, BCBA says thank you. These funds will assist us in our continuing effort to facilitate researcher access to the tissue and data that is vital to advancing brain cancer research and ultimately defeating this deadly disease. Let’s do it again! Register your interest for our next ride in 2019!
As we head into the final, very busy weeks before the launch of our Bike Ride for Brain Cancer, BCBA would like to acknowledge the support of SBS Cycling Central in promoting the event. Currently posted on their website are two videos highlighting BCBA and the ride. The first features cyclist and brain cancer survivor, Ross Bowles and the second backgrounds BCBA - the cause behind the ride.
Perth based Resource Capital Funds CEO and BCBA Bike Ride sponsor, James McClements and his wife Meredith are clocking up regular 100km training rides in preparation for their trip to Sydney to join fellow cyclists on our 2 day/250km cycling challenge. We thank them and our other sponsors, Champion Iron, EHR and Riversdale Resources for their amazing support and recognition of the importance of research infrastructure such as BCBA in advancing brain cancer research.
If you would like to join us on the road or just learn more please visit our fundraising website.
We are very excited to announce that rider registrations are now open on our new fundraising website bikerideforbraincancer.com.au The 2 day Ride from Sydney to the Hunter Valley will take place 9 – 10 March 2018. Places are limited so register now!
We plan to make it a weekend of fun for all the family and there will be many ways for non-cyclists to get involved. Make sure you stay in touch through our Facebook page @BCBAustralia as we provide updates on activities, as well as information such as booking accommodation for the Hunter Valley.
To register click here
For information regarding sponsorship click here
Newspaper journalist, Jane Hansen, has been running a campaign to push for awareness and funding for brain cancer research. The background story to BCBA’s effort to network and harmonise Australia’s fragmented paediatric and adult brain cancer biobanking operations became her focus in a recent article in the Sunday Telegraph.
To read the news item click here
This meeting held recently in Stockholm provides a global platform for comprehensive discussion and collaboration on activities important for biobanking. BCBA Steering Committee member, Professor Jenny Byrne, attended and reports that the opening address by Gregory Simon, President of the Biden Cancer Initiative, was inspirational and had attendees talking for days afterwards. However, it was Edward Dove’s presentation on international ethics review equivalency that provided her conference highlight. You can learn more about this important work here.
As for future meetings, Prof Byrne would like to see more discussion around how biobanks support research. In her words “We need to measure and compare biobank outputs more effectively and in more detail, so that we can improve how biobanks support research”.
The Directors of the Isabella and Marcus Brainstem Tumour Fund, Khushwant and Rob De Rose and Daniella and Anthony Ruberto have followed up their 2016 grant to BCBA with another $25,000 donation in 2017. This vote of confidence in BCBA and its operations is extremely valuable and we are all grateful to be the recipients of such generous and continued support from the Directors of this fund that was established to honour the memory of their children Isabella and Marcus.
This month we highlight the work of BCBA network member, the CHW Tumour Bank. Established in 1998, almost two decades of collecting rare brain tumour tissue is providing important sample contributions to significant paediatric brain cancer research such as this Canadian study into rare Atypical Rhabdoid Teratoid tumours published in Cancer Cell – emphasising why collecting rare tumours over time is vital to future understanding.
A/Prof Dan Catchpoole, who has been Head of the CHW Tumour Bank since 2001, has also recently taken on the role of ISBER Director at Large for the Indo-Pacific Rim with responsibility for supporting and growing biobanking in the entire region. Congratulations Dan from all at BCBA.
“We are on the cusp of personalised medicine for brain cancer patients which will only occur with the support provided by tissue banks.”
These are the words of Dr Sarah Olson, whose initiative and hard work in combination with the biobanking expertise of Emma Raymond has created Queensland’s first centralised repository of brain tumour tissue. The samples collected from donors in both public and private hospitals across SE Qld are now available to researchers with ethically approved projects. QBTB is yet another in the BCBA national network of biobanks dedicated to enabling and accelerating the search for better treatments and outcomes for brain cancer patients.
The return of research results and incidental findings is a hot topic worldwide in biobanking circles. BCBA’s Robyn Leonard joined pancreatic cancer researcher, Amber Johns and Australasian Biospecimen Network Association Chair, Catherine Kennedy to make up the Australian contingent on an international panel discussing this vexed issue at the recent International Society for Biological and Environmental Repositories (ISBER) conference in Toronto, Canada. BCBA will focus on developing tools to assist its member biobanks with this issue.
"Improving biobank standards - local and global perspectives" is the title of the full day conference to be held at RPA on 12th June 2018. Dr Kerry Chant, NSW Chief Health Officer, will deliver the opening address with an impressive line up of local and international guest speakers to follow.
For more information and to register for the event visit Eventbrite
2:15 - 4:15pm 7th October 2018
The annual BCBA Consortium Meeting will once again be held in conjunction with the COGNO Annual Scientific Meeting. This year the meeting will be held in Brisbane. We will provide venue information as it comes to hand.
18-19 October 2018
"The Art of BioBanking" is the title of this year’s ABNA conference to be held in Melbourne. Further information will follow.
ADVANCE BRAIN CANCER RESEARCHSUPPORT US